Julie Noted

my thoughts for your consideration

The Essentials of Life. May 16, 2011

Filed under: Lifestyle Choices — julesmc99 @ 2:34 pm

I saw this on a lovely day out on Saturday with Alex.  I asked him to take a photo of it so I would remember what it said.

The ESSENTIALS of LIFE:

Someone to Love

Something to Do  (I nearly wrote someone to do!!)

Something to Look Forward to.

I realise our lives are much more complicated than that but it kinda sums up the basics and maybe just every now & then we need to remember that.

Don’t get me wrong, I’m still buying that lottery ticket! LOL 😉 Wish me luck xxx

 

Give & Take – but not in the compromising way!

Filed under: Friends & Family — julesmc99 @ 2:27 pm

Some people in this world are givers, some are takers. Some people get a kick from sharing information they have for the greater good, so others don’t have to search or fight for the information themselves. Some like to keep things to themselves (unless they get to show off). Some people help friends in times of need (without being asked to!) some people don’t. I’m happier being the first person and will not change for anyone.

All my special needs mums are more aware of this than anyone else I know and all fall into the first category. Sometimes the only way through a particular battle with our children & their doctors, for instance, is to communicate with each other and learn from those that have been there before. You then know not only what to ask, but what to ask for & how to ask for it. Most of this can be done socially of course over dinner & a glass of something so win win situation for us all …. for a change. 

Having friends you eventually discover are the latter just reinforces both positions. They say you never regret the things you do, just the things you don’t. I’ll drink to that (bit early though!) and just say some of the things you do are to learn from so you don’t make the same mistake again. When you’re fighting a battle in one direction of your life you feel like everyone else is a good guy, shame on you. Some slippery little suckers will get right in there and take what they can, suck you dry if they could and when you don’t allow it to happen anymore just move on. Well depending on the type of person you are depends on how you bounce back I guess. Well unfortunately the situation I’m in has taught me lots over the years and bouncing back is a big part of my life so there’s no danger of anything that has happened to me so far bringing me down to their level. I am happy with the people around me right now all of whom are good positive people whatever their situation may be. Life is good don’t let anyone change who you are. And for the person who said that they wasn’t sure how long my happy demeanour could last because Cameron was so complex (understatement) …. UP YOURS!! Is the politest thing I can put on here. 

And as they say – What doesn’t kill you makes you stronger.

 

A New Day. May 10, 2011

Filed under: Cameron aka Special Needs Stuff — julesmc99 @ 8:03 am

Not a bad start to the day. Getting Cam ready in time for the school bus can be ….. challenging!

This morning’s agenda includes a trip to Cam’s school for an appointment with the Community Paediatrician. Same person that does the school medical which sounds like a good idea but are really a chance to catch up on what else has been happening, what other doctors or professionals we have seen etc. Not a complete waste of time although this opinion can change if they are running late and it has a knock on effect on me having to make more time up at work than I should have had to! Still at least this CP is more helpful than the last. Not even going to go there today however will mention that I have previously indicated the main school nurse is to be excluded from these meetings as she is a waste of space. Now that is a whole other blog itself which would get contributions from many of the school parents that I know and probably from some I don’t know.

That’s one of the big differences when your child goes to a Special Needs School as they are usually transported by a bus which means no school gate mums! You don’t get to meet the parents ‘naturally’ who may well be in a similar situation to you. I am trying to remember how I first got to know some of the other parents, some of whom are now very good friends. I think it was the Head Teacher who first put two of us together to help on the PTA. From there I have met some fantastic people although as the years have progressed I have realised that there is no one with a child at that school who is in a similar situation to me/us. This is partly due to the most basic fact that everyone is different and this is no different for our kids. However due to the number & complexity of Cam’s problems, he is truly a force to be reckoned with and having visited other families over the years it is slowly dawning on me that Cam is somewhat of an extreme example and bloody severe in every aspect. There is no respite from Cameron really – yes even when he goes away! – because that just gives you time to check prescriptions, medical supplies,  nappies and generally catch up on all the stuff you can’t do while he is around. Especially as he now requires two people for his care , it is very difficult for instance to get anything done without being interrupted after 5 mins to assist with some nappy change, manoeuvre or other issue. As he is now physically hard work it is difficult to take him out and so very frustrating to have a weekend at home yet not achieve anything – admittedly part of this can be due to apathy because of what else is happening in the house.

When other parents of special needs kids tell you “We wouldn’t want to be in your shoes” or ” I don’t know how you cope” you know you are in trouble. That and probably a little bit crazy, especially after all these years!

 

The Truth Will Set You Free, ……. but first it will piss you off! May 9, 2011

Filed under: Lifestyle Choices,The knock on effect! — julesmc99 @ 9:56 am

So finally took the big step & went back to the gym this morning. I love the people at Target Fitness, always so welcoming and so not like other gyms. It really was good to be back. So this time ……..? Strict diet started yesterday with a vengence so need to keep at it or not book holiday this year!

Weight issues are not my conversation of choice (ask my husband!) however sometimes needs must and they are a big part of most women’s lives whether they admit it or not.

So the truth is I am overweight and yes it does piss me off that I gain weight so easily. If the powers that be were going to give me this life then the least they could have done is make me one of those people that lose weight with stress!?

I love this phrase The truth will set you free, … but first it will piss you off! 

It’s so true. You find something out about someone or an event or whatever and it’s hard to take or accept the information. Yes in certain situations it will piss you off initially whether it be because you were lied to, deceived in other ways or because you are embarassed that you fell for it. But once you get over that initial finding out/truth thing it feels better, even good, and then you can move on with your life without that negative energy dragging you down. Sometimes when you look back – not in anger 😉 you may even notice more things and again once you realise the truth you can go through that same phase. Eventually however you have to believe it’s for the better. Time can be a great healer and you come to terms with what has happened. And if you can look back and think you gave it your best (in whatever way) in an honest & open way then there are no regrets, walk on with your head held high and value your real friends.

Be glad that you are free of any negativity (or energy vampires as I have heard them called cos they suck the life right out of ya!)

Life is good…… 🙂

And as they say “People come into your life for a reason, a season or a lifetime” ……

 

Hello world! May 8, 2011

Filed under: The knock on effect! — julesmc99 @ 6:13 pm

Julie Noted!

Yes it’s a play on words and the ‘proper’ phrase duly noted means the information received will get the attention and consideration it is due or in modern terms,  I hear what your saying! You may not agree with them but you know what they mean.

I like the bit about getting the attention & consideration it is due. I have a habit of over analysing & dwelling on things. Sometimes giving too much thought to minor issues (or people) that really don’t deserve my time or energy.  Let’s hope this is a new leaf being turned and from now on the right amount of attention allocated according to the importance of the matter or situation.

“Hallelujah!”  I hear my friends saying.